Adult Primary Ciliary Dyskinesia (PCD) Centres

Concepts

• leeds
• health services
• adult primary ciliary dyskinesia
• ciliary dyskinesia
• adult
• pcd
• ciliary
• primary
• dyskinesia
• nhs england specialised commissioning

Location

Leeds

Description

This Contract Award Notice is to notify the market that NHS England -Specialised Commissioning have awarded four (4) separate Contracts for the provision of Adult Primary Ciliary Dyskinesia (PCD) Centres across the following Lots:Lot 1 -North: comprising the NHS England Regions: the North East and Yorkshire; the North West Lot 2 - Midlands and East of England: comprising the NHS England Regions: the East Midlands; the West Midlands and the East of England Lot 3 - South: comprising the NHS England Regions: South East and the South West Lot 4 - London: comprising the NHS England London Region NHS Arden and Greater East Midlands Commissioning Support Unit (AGCSU), on behalf of NHS England Specialised Commissioning (referred to as the Commissioner), undertook a market engagement exercise to understand the current and future capacity and capability of the incumbent and potential providers within this highly specialised area.As a result of this exercise, it was deemed that a formal tender process was not required as it was noted that competition is absent in each individual lot, the Commissioner reserved the right to direct award to provider(s) with no further competition.This contract is effective for an initial period of three (3) years from 1st November 2023, with an option to extend for a further one (1) year period. No response required.

Lot Division

Award Detail

Award Criteria

CPV Codes

• 85100000 - Health services

Indicators

• Award on basis of price.

Legal Justification

A comprehensive market engagement exercise was conducted to understand the current and future capacity and capability of potential providers.The exercise included a publicly accessible invitation for providers to express interest and demonstrate their capability to meet the contract requirements.For each of lots only one capable provider responded to the market engagement exercise.The responses were thoroughly assessed and deemed to be sufficient evidence of a lack of competition (per lot) in the market for the specified service.The market engagement documentation clearly stated that commissioners would consider placing direct awards where competition is deemed to be absent following a review of the market engagement responses.Given the evidence of a lack of competition, as demonstrated by the singular response (per individual lot) to the market engagement exercise, direct awards have been placed with all capable providers for each of the Lots.

Other Information

This service is for all patients with a diagnosis of PCD over the age of 16 years. This can be patients with a diagnosis made by the PCD Diagnostic Service, patients with a diagnosis of PCD made by a diagnostic service outside the UK, with diagnostic criteria compatible with those in England, or in rare cases, patients in whom a definitive diagnosis has not been made, but in whom the diagnosis is extremely likely (in the clinical opinion of the PCD Specialist). It is a lifelong service for these patients. The service can be accessed by any eligible patient with a diagnosis of PCD irrespective of gender, age, sex, disability, religious belief. Interpreters or use of a language line are provided for families for whom English is not their first language. The national adult PCD service works closely with the paediatric PCD services and provides a geographically accessible service for patients offering seamless transition for patients from the paediatric PCD centres. The paediatric HSS manages patients up to the age of 16 years, thereafter patients will be managed in the national adult PCD service. Each service additionally provides an outreach service to ensure national equity of access. The centrally commissioned specialised service provides all patients with an annual review, access to the multidisciplinary team (MDT) and a detailed management plan. Further outpatient appointments at the specialist centre are dictated by clinical need and stability. Some PCD patients require intravenous antibiotics either at home or as inpatients. Inpatient care, with appropriate specialised physiotherapy and MDT input, is provided either at the specialist centre or in local services with supervision by the specialist centre. The core objective of this service is to ensure that all patients with PCD have access to the optimal standards of care to enable a reduction in the morbidity and mortality associated with the condition. The service aims to: ensure that all PCD adult patients, wherever they live, have access to and are managed according to optimal standards of care. This includes ensuring that: all PCD adult patients have an annual review by a specialist PCD MDT consisting of a PCD specialist consultant, physiotherapist, nurse specialist and ENT specialist with access to a dietician and psychologist as needed. all PCD adult patients have access to appropriate home and inpatient antibiotic services care and management of patients with PCD is coordinated so that patients receive appropriate respiratory, ENT, cardiac, obstetric and physiotherapy care, fertility advice, palliative care and care for other conditions associated with PCD patients / families and other health professionals are educated on the implications and management of PCD. raise awareness in the adult respiratory community about the diagnosis of PCD to ensure that these patients are transferred from bronchiectasis clinics to the PCD specialist service to monitor their condition and limit disease progression reduce the morbidity and mortality related to PCD, as well as the economic burden, associated with late diagnosis and poorly managed disease enter patients into a national database.